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Data in Action!
The Medical Home: Health Care Access and Impact for Children and Youth in the United States
Publication
Published paper describing the characteristics of children with medical homes and investigating the relationship between presence of a medical home and selected health care outcomes.

Presentations


The Data Resource Center for Child & Adolescent Health presents at conferences nationally and internationally regarding children's health and health measurement. Below are selected presentations, presentations from data users, audioconferences and MCHB DataSpeak presentations. Unfortunately. we are unable to provide 508-compliant versions of these documents. For more information, click here.

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Selected Presentations from the DRC

Advancing Improvements in MCH Outcomes Using Local Area Estimates from the National Survey of Children's Health: An Overview of Methods and Field Applications. The CityMatCH Leadership & MCH Epidemiology Conference (MCH Epi) September 14, 2016.

When Complex Care Goes Complementary: Closing the Loop on Integrated Care for Children with Special Health Care Needs
.The International Research Congress on Integrative Medicine and Health (IRCIMH) May 15, 2014.

Complementary and Alternative Medicine Use Among Youth with Recurrent Headaches (HA).The International Research Congress on Integrative Medicine and Health (IRCIMH) May 15, 2014.

Pediatric Integrative Medicine: Current Review of Emerging Trends.The International Research Congress on Integrative Medicine and Health (IRCIMH) May 14, 2014.

When Complex care Goes Complementary: Closing the Loop on Integrated Care for Children with Special Health Care Needs. Pediatric Academic Societies (PAS)
May 3, 2014.

A Profile of Health Problems and Quality of Care for Publicly vs. Privately Insured Children in the US. Pediatric Academic Societies (PAS) April 28, 2014.

Advancing the Use of Population-Based National Survey Datasets Including Data on CAM Use in Children.The International Research Congress on Integrative Medicine and Health (IRCIMH) May 13, 2014.

Putting Data into Action - The Data Resource Center for Child and Adolescent Health.Division of Services for Children with Special Health Needs (DSCSHN) Webinar. February 25, 2014.                                                                          

Resilience and protective factors in childhood: Understanding the relationship of positive health indicators to home, school, and community environment. American Public Health Association (APHA) Annual Meeting and Exposition, November 2-6, 2013.

Adverse childhood experiences: Understanding association with child health outcomes and access to health care using a life course perspective. American Public Health Association (APHA) Annual Meeting and Exposition, November 2-6, 2013.

National and State Data on ACE Risk and Resilience: The Call for Mind/Body Interventions. The National Summit on Adverse Childhood Experiences (ACEs) May 14th 2013. 

Prevalence, Characteristics and Experiences of California's Children with Special Health Care Needs. Legislative Briefing, California State Assembly April 18, 2013.

Engaging Families and Leveraging National and State Data to Advance Quality Improvement Partnerships.18th Annual Maternal and Child Health Epidemiology (MCH EPI) Conference.

Advancing Partnerships: Data, Practice, and Policy. December 12, 2012.

Putting Data Into Action: Accessing and Using Data from the NS-CSHCN.
State Public Health Autism Resource Center Technical Assistance Webinar. March 21, 2012.

Putting Data Into Action: Accessing and Using Data from the National Survey of Children with Special Health Care Needs. Association of Maternal and Child Health Programs (AMCHP) Annual Conference February 14, 2012.

Findings from the 2009-2010 National Survey of Children with Special Health Care Needs (NS-CSHCN). Maternal and Child Health Bureau's Data Speak January 19, 2012.

National and State Prevalence of Standardized Developmental Screening and Links to Early Intervention and Mental Health Services Access. Academy Health Annual Conference June 13, 2011.

Merging Data and Policy for Children's Health: Influencing Change at the State Level Using the National Surveys of Children's Health and CSHCN. Association of Maternal and Child Health Programs (AMCHP) Annual Conference February 12-15, 2011.

Youth with Special Health Care Needs: A Snapshot of Oregon Findings from the National Survey of CSHCN. Oregon Health Authority February 3, 2011.

Understanding and Applying Multilevel Models in Maternal and Child Health Epidemiology and Public Health. Maternal and Child Health Epidemiology Conference December 15, 2010.

Demystifying Data! An Overview of 3 Child & Adolescent Parent Survey Health Datasets & Research Resources. Pediatric Academic Societies May 3, 2008.

Consumer-Centered Data and Strategies to Advance Evidence-Based Advocacy in Child Health. AAP Chapter Advocacy Summit November 10, 2007.

National and State Findings and Resources for Assessing School-Related Functioning, Health Needs and Coordination of Care for Children and Youth with Special Health Care Needs (CYSHCN). National Assembly on School-Based Health Centers National Convention June 30, 2007.

The Data Resource Center for Child and Adolescent Health: Using Data for Action. Family Voices National Conference May 25, 2007.

Comparing Health and Health Outcomes for CSHCN and Non-CSHCN: Findings from 3 National Surveys. Association of Maternal and Child Health Programs (AMCHP) March 2007.

Issues to Consider when Analyzing Data from the SLAITS Child Health Surveys. Data Users Conference July 2006.

Measuring coordination of care for children with special health care needs: Alternative methods and findings in national and state level surveys. Academy Health’s Annual Research Meeting (ARM) June 2006.

Maximizing the Use of National Surveys on Children’s Health. Kids Count Grantee Meeting Spring 2006.

 Children with Frequent or Severe Headache: New Data on Population Prevalence, Characteristics, Health Status and needs and Access to Health Care (Also see Poster and Abstract). Pediatric Academic Society and Easter Society for Pediatric Research Annual Meeting March 2006.

Alternative Models for Stratifying CSHCN Identified through Three National Surveys. Child Health Services Research Meeting June 2005.

Identifying Children & Youth with Special Health Care Needs for the National Survey of CSHCN. Association of Maternal and Child Health Programs (AMCHP) Annual Conference February 2004.

Presentations from Data Users

Predicting Care Coordination in the Presence of a Comorbid Developmental Disability or Psychosocial Problem.
September 2016, Society for Developmental & Behavioral Pediatrics Annual Meeting, Iskander, J.M., Monnin, K.S., & Wildman, B.G.
This poster uses data from the 2009/12 National Survey of Children with Special Healthcare Needs to examine whether comorbid psychosocial problems or developmental disabilities affected care coordination among children with chronic illnesses.

Predicting Difficulty Making and Keeping Friends for Children with Special Health Care Needs.
April 2016, Tennessee Association of Family and Consumer Sciences Conference, Sisk, C.
This presentation uses data from 2009/2010 National Survey of Children with Special Health Care Needs to investigate for CSHCN if there was a relationship between difficulty making and keeping friends and 14 other independent variables.

The National Survey of Children’s Health and Behavioral Health Measures
June 2015, National Academies of Science, Kogan, M.
This presentation by the US Department of Health and Human Services gave an overview of how national surveys such as the NSCH and NS-CSHCN can be used for meeting Healthy People 2020 objectives, federal policy and program development, Title V needs assessments and funding, state-level planning and program development, and scientific research. The Data Resource Center is listed as a resource for accessing survey data.


 Frequency of medication treatment, behavioral therapy, and dietary supplements among a national sample of children with special health care needs and ADHD
. October 2012, American Public Heath Association Annual Meeting,  Visser, S.N., Danielson, M.L., Ghandour, R.M.
Using data from the 2009/10 National Survey of Children with Special Health Care Needs this team examined medication use and behavioral therapy treatment among children with ADHD. This presentation includes interesting findings across race/ethnicity, geographic region, age and insurance type.

Examining the relationship between emergency room visits of children with neurodevelopmental disabilities and access to services and family financial hardship: 2005-2006 National Survey of Children with Special Health Care Needs.
October 2012, American Public Health Association Annual Meeting, Lin, S.C.

Changes in Receipt of Preventive Dental Care among American Indian/Alaska Native Children.
This poster presentation uses data from the 2003 and 2007 National Survey of Children's Health to examine changes in the utilization of preventive dental care American Indian/Alaska Native (AI/AN) children. The poster was presented at the 2010 National Oral Health Conference in April 2010.

Audioconferences

Using the Data Resource Center To Strengthen Your Story! April 2007.

Using the Data Resource Center for State-Level Indicators of Child Health and Well-Being--Your Data, Your Story! December 2006.

MCHB DataSpeak

Findings from the 2009-2010 National Survey of Children with Special Heath Care Needs.
This program coincided with the data release of the 2009-2010 National Survey of Children with Special Health Care Needs (NS-CSHCN). Over the course of the program, 4 speakers discussed the purpose, methodology, key findings, and ways to access both state and national data of the 2009-2010 NS-CSHCN.

New Findings from the 2007 National Survey of Children’s Health (NSCH).
This DataSpeak focused on information from the 2007 National Survey of Children’s Health. A leading scientist from the NCHS provided an overview of the survey methodology and a senior representative from the MCHB discussed potential applications of the survey as well as selected findings. The director of the CAHMI provided information about accessing National- and State-level survey data online and highlighted key State-level survey results.

Findings from the 2005-2006 National Survey of Children with Special Health Care Needs.
This DataSpeak conference coincided with the data release of the 2005–2006 NS-CSHCN. The Director of the Office of Data and Program Development at the Maternal and Child Health Bureau, a Senior Scientist at the CDC’s National Center for Health Statistics, and the Director of the National Data Resource Center for Child and Adolescent Health provided an overview of the survey findings and implications.

New Findings from the National Survey of Children's Health.
Building upon a DataSpeak conducted in 2005 which provided an overview of initial findings from the survey, this program presented findings from three indepth studies that were featured in a special February 2007 issue of Pediatrics.

The National Survey on Children’s Health: A New Data Resource for the MCH Community.
In this DataSpeak program, officials from the MCHB and NCHS described the purpose of the survey, its design, and the methodology used to collect the data. A professor at the Institute for Health Policy Studies, University of California at San Francisco provided an overview of survey findings.