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Data Resource Center News

The latest announcements and news on child and adolescent health from the Data Resource Center.

Newsletters & Announcements from the DRC

Visit us at AMCHP, an ASD Chartbook, and Featured Data Snapshots (04/06/2016)
This newsletter invited AMCHP attendees to visit our booth and attend our data workshop and ACEs meeting. Additionally, we highlight our just-released chartbook on children with Autism Spectrum Disorder and their families, using data from the NSCH, NS-CSHCN, Pathways, and NHIS, as well as two interesting data snapshots – the Rural Urban Commuting Area profile and the U.S. state comparison maps.

Introducing the Newly Redesigned DRC Website! (01/26/2016)
Read about the DRC website’s updated look and feel, and click on the links to check it out and give us feedback! This newsletter also announces the addition of two new features to our interactive data query: state- and census division-level NHIS data, and a special section for Title V National Performance Measures and National Outcome Measures in the NSCH and NS-CSHCN.

See the DRC at APHA and Learn About ACEs, Resilience, and Well-Child Care! (10/30/2015)
In this newsletter, we invite everyone to visit our booth and attend our sessions at APHA in Chicago. We also introduce Grace, our newest staff member. We also highlight our research and resources on Adverse Childhood Experiences and resilience, and give more information on our Well-Visit Planner tool to improve the well-child visit for both families and health care providers.

New Pathways and NHIS Queries! (08/21/2015)
Read about the new data queries for the National Health Interview Survey-Child and the Survey of Pathways to Diagnosis and Services! Also included in this newsletter are a profile of a new book on ACEs using data from the National Survey of Children's Health, webinars and tools to improve and increase use of the Well Visit Planner, and a link to the 2015 DRC User Survey.

ASD Portal and Data Query and a National Agenda Setting Process for ACEs and Positive Health (04/24/2015)
In this newsletter, we introduce the new NHIS and ASD data queries, along with the new "Learn About the Survey" portal for Pathways data. We also discuss the national agenda setting process around child trauma and positive health, give webinar announcements, and talk about the new Home Visiting issue briefs available through HRSA.

New Ways to Engage with NHIS and NSCH Data, Updates to Health IT Tools for Families (1/25/14)

Discover new, intuitive ways to engage with expanded NS-CSHCN and NSCH 2011/12 study data on the Data Resource Center and The CAHMI is also pleased to announce the expansion of our pediatric Well-Visit Planner to include Spanish language translation and functionality through age 6, as well as plans to develop a Local Area Estimator for child health indicators based on NSCH and NHIS data. Find out about this and more – including recent partnerships and initiatives surrounding alternative medicine and autism spectrum disorder – in our January 2014 Newsletter. 

New Data to Celebrate Child Health Day! (10/21/2013)

Learn about Child Health Day and how the DRC is working to improve child health outcomes! Highlights of this newsletter include a data spotlight on Autism Spectrum Disorder (ASD), a profile of the Well-Visit Planner parent engagement tool, a link to a survey on pediatric integrative medicine, information on upcoming presentations, and important child health news and policy updates.

Dataset and Codebook Now Available - 2011/12 National Survey of Children's Health (06/13/2013)

Get your copy of the 2011/12 National Survey of Children's Health dataset today! Highlights of this newsletter include a data spotlight on Adverse Childhood Experiencies (ACEs), a profile of data in action in California, links to upcoming and recent child health presentations, and important health awareness dates perfect for  for advocating children's health.

Now Available - More from the 2011/12 National Survey of Children's Health (04/09/2013)

We are continuing to enable your access to findings from the 2011/12 National Survey of Children's Health (NSCH). In addition to state-by-state snapshots on key measures, new child health indicators are being added every day. Browse all the data available to date .

Recent Webinars!

  • September 10, 2015 (2-3 PM EDT) HRSA DataSpeak for the Progress and Redesign of the NSCH and the Data Resource Center (Announcement - slides coming soon)
  • April 16, 2013 (3-4 PM EDT) HRSA DataSpeak for the 2011/12 National Survey of Children's Health (Archived)
  • April 25, 2013 (12 PM CDT) How to Use Data to Improve Care Delivery, part of the 2013 Medical Home in Pediatrics Webinar Series

New Data from the 2011/12 National Survey of Children's Health (03/22/2013)

State-by-state snapshots of new data from the 2011/12 National Survey of Children's Health (NSCH) are now accessible on the Data Resource Center (DRC) website. Highlighted topics include childhood obesity, premature birth, adverse childhood events, mother's health, and as reported in this HRSA/CDC report, an increase in prevalence of ASD among US children age 2-17. 

View full online newsletter archive

DRC in the News

A wide range of people and organizations use the Data Resource Center for research, policy development, education and more. Below are links to press coverage featuring the Data Resource Center on important topics related to children's health. Please see the examples of data use, articlespresentations and chartbooks sections of our website for additional resources on how others are using this important data.

April 12, 2016: Researchers Put the "Issue" to Rest: Children of Same-sex Couples Just as Healthy as Those of Different-sex Couples
A nationally representative study in the Journal of Developmental and Behavioral Pediatrics found ‘no difference’ in general health, emotional difficulties, coping, and learning behavior comparing children with same-sex and different-sex parents in stable relationships. The lead researchers of the study commented that, independent of family structure, “strong relationships are important contributors to good child outcomes.” The study used data from the National Survey of Children’s Health to compare child health outcomes of female same-sex parent households and different-sex parent households. Male same-sex couples were not included because of the small number of households in the dataset that met the study criteria. This study received coverage on Vox, the Daily Mail (UK), CNN, Medical Daily, Science Daily, ThinkProgress, Romper, Fox News, Gay Star News, and more.

April 7, 2016: Uninsured Kids Are Least Likely to Access Benefits of a Medical Home
A new study released in the Maternal and Child Health Journal analyzed trends in "medical home" care for children in the U.S. using the 2003, 2007, and 2011-12 National Survey of Children’s Health. The patient-centered medical home model emphasizes primary care that is comprehensive, continuous, accessible, and family- centered, where holistic health care is provided by a professional with a close personal relationship with the patient. Overall, the study found that there were improvements in access and continuity of care from 2003 to 2012, but a decline in comprehensive and family-centered aspects of care. Further, kids with multiple risk factors – including race, household language, poverty level, parent education level, and especially health insurance coverage – experienced poorer care. Specifically, uninsured kids saw an increase in continuity of care between 2003 and 2012, but experienced a decline in access, comprehensiveness, and family-centered aspects of care. The authors concluded by imploring the public health community to dedicate more resources to enhancing care for uninsured children; otherwise, this population will continue to be exposed to structural health risk.

February 25, 2016: New Study Suggests a Link between ADHD and Non-correctible Vision Problems in Children
A new study published by University of Alabama Birmingham researchers citing National Survey of Children’s Health data found that ADHD prevalence is about twice as high among children with non-correctible vision problems – like color-blindness or lazy eye – compared to other children. The study was prompted after lead researcher Dawn DeCarlo began noticing vision impairment and ADHD comorbidity in her patients. DeCarlo warns that a causal relationship has not been established, suggesting that concerned parents of visually-impaired children first seek optical care for their child before worrying about their child developing ADHD. 

January 20, 2016: Presence of Neighborhood Parks and Playgrounds Linked to Better Obesity and Fitness Outcomes for Kids
It may seem like common sense, but researchers at Ball State University have gleaned that the presence of outdoor amenities in a neighborhood is linked to a significant improvement in obesity rates and physical fitness outcomes, based on an analysis of the 2007 National Survey of Children’s Health. Significant differences in BMI were present comparing children with and without access to places for outdoor recreation, with findings varying across gender, race, family income, and the presence of other facilities. Interestingly, the positive impact of park access was found to be greater among children in unsafe neighborhoods, suggesting viable paths for health and civil policy. 

January 2016: Research Suggests Improved Access to Care Among Medicaid/CHIP Beneficiaries than Privately Insured Children

Researchers from the University of Pennsylvania and Johns Hopkins University compared health care access indicators between publicly and privately insured children in the 2003, 2007, and 2011-12 National Surveys of Children’s Health. They concluded that Medicaid and CHIP beneficiaries were significantly more likely to receive preventative physical and dental health checkups. Privately insured children with special health care needs (CSHCN) were also found to experience significantly greater difficulty accessing specialist services, with a lower likelihood of care always meeting the child’s needs than those insured by Medicaid or CHIP. Out-of-pocket costs were also significantly more common for caregivers of privately insured children; indeed, the commercial health insurance market – through increased cost-sharing – may be creating barriers to access despite higher costs to families. 

January 2016: Immigrant Children with Special Health Care Needs Experience Significant Care Coordination Disparities

Using data from the 2011/12 National Survey of Children’s Health, researchers from the University of Michigan Medical School have published new research in the journal Pediatrics concluding that children with special health care needs (CSHCN) from immigrant backgrounds are significantly less likely to receive coordinated care within a medical home. Only around one in four CSHCN who have emigrated to the U.S. have a medical home, compared to about half of U.S. born children. Medical home access of CSHCN born in the U.S. to immigrant parents and of non-CSHCN immigrant children indicates similar disparities. The medical home component most frequently lacking was family-centered care. 

September 24, 2015: New Indiana State Health Program Offers Families Tools to Combat the National Childhood Obesity Epidemic
The Indiana State Department of Health has implemented a new program offering guidance for families on how to stay healthy in keeping with National Childhood Obesity Awareness Month, citing NSCH data. Childhood obesity is an especially acute public health problem in Indiana, where 31.5% of children ages 10-17 are obese. The program highlights dietary and behavioral changes – including exercise, less screen time, and alternative reward systems to junk food – that can counteract the epidemic.

September 22, 2015: NSCH Data Suggests Early ADHD Diagnosis Obscures Autism Spectrum Incidence Due to Symptom Overlap

Researchers at the Boston Children’s Hospital investigated the relationship between ADHD diagnosis and autism spectrum disorder. Using NSCH data, they concluded that an earlier diagnosis of ADHD is often associated with a late diagnosis of autism, a disorder where starting early matters. The researchers hypothesize that since both diseases share some similar symptoms, ADHD masks the autism symptoms to many pediatricians and parents who believe they already have a fitting diagnosis.

Also check out this August article referencing DRC data for a personal look at why early intervention for children with special needs really matters. 

September 20, 2015: NSCH Data Suggests that Age is an Important Factor Surrounding ADHD Diagnosis

Researchers using NSCH data explored a number of dynamics surrounding age of ADHD diagnosis. They found that children under 6 were more likely to be diagnosed by a psychiatrist than a pediatrician, and that younger children generally received more attention from specialist healthcare professionals and community support mechanisms.

August 5, 2015: Health Literacy Study Highlights Importance of Parent Health Literacy for CSHCN Using DRC Data

NS-CSHCN data were used in a recent study of health literacy among parents of children with special health care needs. Health literacy has been recognized as an important indicator of the quality of health care self-management, and parent literacy is an understudied area of pediatric care quality. The study pointed to new areas for research and improvement, including the relationship between care utilization and cost and parent health literacy in an inpatient setting.

April 17, 2015:
Kids Living in Dysfunctional Homes More Likely to Have Asthma
A study published in the Annals of Allergy, Asthma, and Immunology authored by researchers at Brown University strengthened previous research relating childhood stress to the development of asthma. Researchers led by Dr. Robyn Wing examined data from the National Survey of Children’s Health, concluding that the more adverse childhood experiences such as the death of a family member, divorce, or extreme poverty that a child has been exposed to, the higher their risk for developing asthma. Dr. Wing explained this correlation biologically – acute or chronic stress causes physical symptoms that can change our body’s production of hormones, which leads to developmental implications.

April 1, 2015:
ADHD Medication and Treatment Inadequacies
Health analysts at the Centers for Disease Control have identified that while most children with ADHD received either medication treatment or behavioral therapy, many do not receive treatment in line with a 2011 ADHD best practices guideline. 2009-10 National Survey of Children with Special Health Care Needs data revealed that less than 1 in 3 children ages 6-17 and only half of children ages 4-5 receive a recommended treatment balance; instead, medication is often used as a first resort over recommended behavioral therapy.

December 11, 2014: Half of All Kids are Traumatized
Recent research suggests that adverse childhood experiences, such as severe poverty, the incarceration of a parent, or the death of a family member, leave a permanent developmental imprint on children. The magnitude of childhood trauma nationwide is not to be underestimated – a new study in the journal Health Affairs directed by CAHMI director Dr. Christina Bethell found that 48% of children in the 2011-12 National Survey of Children’s Health sample had experienced one or more traumatic childhood events. These findings prompt further investigation into “trauma-informed” medical care and wellbeing strategies specific to the experiences of any given child.

August 16, 2014:
Kids With a Parent in Jail Need Special Care, Research Says
A new study published in the Journal of Health and Social Behavior examines the health disparities that children with incarcerated parents face as a vulnerable population. Using 2011-12 National Survey of Children’s Health (NSCH) data, researchers concluded that having a parent in jail has a greater association with increased rates of behavioral problems like ADHD as compared with groups who experience other potentially traumatic events, like divorce or the death of a parent. Consistent with massive disparities nationwide in incarceration rates for blacks and whites, black children are far more likely to experience a parent in jail and are thus at an increased risk of developmental and behavioral disorders. As the incarceration rate in the US continues to climb, further research on the impact of incarceration on child health and wellbeing is warranted. For more information, see the recent report (using NSCH data) from Child Trends entitled Parents Behind Bars: What Happens to Their Children?

June 4, 2014:
Health foundation chief objects to bill that would allow school districts to get waivers from recent nutrition standards
Susan G. Zepeda, the president of Kentucky’s public-interest health foundation, has objected to US House Appropriations Committee legislation that would allow schools waivers to opt out of school nutrition standards enacted by the Department of Agriculture in 2010. Citing DRC data, Zepeda demonstrated that as an alarming 35.7% of children in her state are obese, parents and Kentuckians overwhelmingly approve of the USDA meal standards as a countermeasure to the obesity epidemic. Zapeda’s convictions lie in direct conflict with the unsuitably named School Nutrition Association – a special interest trade group of food officials representing companies like Coca-Cola and Domino’s Pizza – which advocates for the waivers. 

May 6, 2014:
Trauma May Boost ADHD Risk
New research suggests a link between ADHD diagnosis and the incidence of traumatic childhood experiences. Researchers lead by Nicole M. Brown examined data from children ages 6-17 from the National Survey of Children’s Health, finding that children diagnosed with the learning disability saw a higher prevalence of all nine adverse childhood experiences (ACEs) included in the survey. Brown’s team also noted that children who experienced many instances of childhood trauma take ADHD medication at higher rates, and were more likely to have their ADHD rated as ‘severe’ by their parent. Further research surrounding the prevalence and types of adverse experiences in children with ADHD will likewise be instrumental in guiding the improvement of ADHD diagnostic accuracy and treatment.

August 27, 2013
Christina Bethell of the DRC presented at the First National Summit on Adverse Childhood Experiences (ACEs), co-hosted by Institute for Safe Families and the Robert Wood Johnson Foundation in Philadelphia May 2013. Please see Dr. Bethell's presentation below titled "National and State Data on ACE Risk and Resilience: The Call for Mind/Body Interventions", which starts at 00:26:15. .

For additional presentations and PDF’s, please visit here: National Summit Presentations.

January 15, 2013

The CAHMI worked with the Lucile Packard Foundation for Children’s Health (LPFCH) to create this comprehensive report on the health and well-being of the state’s children with special health care needs (CSHCN) population. This report features data from the 2009/10 NS-CSHCN and provides a profile of demographic characteristics, physical, mental, and social functioning, and health and community service needs of CSHCN in California. It is a companion piece and update to the 2010 report written in collaboration with LPFCH. The report is explain in this video and has been picked up by the press.

October 09, 2012

The DRC's Complementary and Alternative Medicine (CAM) Profiles were recently featured in a "twitter chat" on use of CAM therapies for children lead by AAP's Section for Integrative Medicine and the National Center for Complementary and Alternative Medicine (NCCAM)! See Dr. Lawrence D. Rosen's debriefing on the conversation, "Wanted: Increased Focus on Pediatric CAM Research".

August, 2012

Dr. Bethell was featured in AMCHP's monthly newsletter, PULSE, in a discussion of mindfulness techniques and their relation to maternal and child health. Mindfulness and MCH: Cultivating the Art and Science of Inside-Out Leadership

May 15, 2012

Dr. Bethell discusses environmental factors that impact obesity and family health with KPTV in Oregon. From KPTV: Is your neighborhood making you fat? Research shows that where you live could actually impact your health.

February 13, 2012

GoBeyond interviewed Dr. Bethell at this year's AMCHP Conference. Dr. Bethell discusses the importance of a resource like the DRC for advancing the quality of child and adolescent health.

December 5th 2011

The Oregon Health & Science University, Health Care, Home, School differ for Children With Special Health Care Needs

May 12th 2011

The Oregon Health & Science University, Study Finds States Vary in Children’s Health; Gaps Exist in Insurance, Quality Care Across Sectors

November 17th 2010

Lucile Packard Foundation for Children’s Health, California Ranks Last in U.S. on Index Measuring System of Care for Children with Special Health Care Needs, Study Finds 

March 2nd 2010

U.S. News & World Report, Child Obesity Rates Going Up

March 2nd 2010

Reuters, Snacks mean U.S. kids moving toward "constant eating"

January 14th 2010

United Press International, 6.7M children have no health insurance

November 23rd 2009

The National Initiative for Children's Healthcare Quality, Child Policy Research Center and Child and Adolescent Health Measurement Initiative Release

May 27th 2009

Kansas Health Institute, New child health data available

June 19th 2008, Oregon falling behind in children’s health care