Especially For Families
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| Provide and promote
family-centered, community-based, coordinated care for children and youth with
special health care needs and to facilitate the development of community-based
systems of services for such children and their families |
“Achieving and Measuring Success: A National Agenda for Children and
Youth with Special Health Care Needs”
Maternal and Child Health
Bureau, 1989.
The national agenda for CSHCN emphasizes that
family involvement is key to the successful development of community-based
systems of care for CSHCN. Families of CSHCN are often the best, and only, sources of information about
how well systems or services are meeting the children's needs.
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Title V Toolbox for Family Participation
What are State Title V CSHCN programs doing to promote family involvement and leadership? This toolbox offers materials and models for strengthening family participation, including involvement in measuring the progress of national goals.
Family Voices
Family Voices is a national, grassroots clearinghouse for information and education concerning the health care of children with special health needs — 40,000 members committed to developing partnerships between professionals and the families of CYSHCN. |
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